Humbling Experiences
by NotDownOrOut
My relationship with my gynecological P.A. is a work in progress. She very much wanted me to see a general practitioner in a clinic setting. So she put me into some waiting list for an appointment at a clinic in Logan Circle. The first time I came up for an appointment the notice came about a day before the appointment. I was unable to make it because I had to work. When I was last at the hospital to see my oncologist the resident checked and informed me I was scheduled for today. So I had a month’s notice.
I will confess that I was reluctant to go. I’m feeling pressure from the P.A. to take blood pressure medicine. My blood pressure has gone up and down. It was at its highest within minutes of learning I had cancer. I shed no tears–not even one for several months–but the stress was affecting my blood pressure for a couple of days. Within three days my blood pressure was back to normal and stayed that way until sometime in the last year. Back in about February it was 180/96. That was the day I had my second post-hysterectomy internal exam. I was over-the-top nervous about the exam. About a week before that appointment it was only 161/111. In May I started getting a swollen ankle and leg and felt the blood pressure climb. My oncologist doubled the dose of the water pill I take. That seems to help the edema and the blood pressure. I have my own cuff at home and take it periodically and my blood pressure was back in the 140/86 range. In August, my blood pressure was 151/92. Dr. H felt it was not a problem, particularly because I have lost weight since February and continue to do so. I am resolved not to start another drug unless I first research it. Once you start some of these drugs it is hard to get off of them and they all seem to cause more side-effects. I am tired of dealing with side-effects!
The other reason I was not keen to go is the hernia. Dr. H wants it fixed. I really cannot contemplate checking into the hospital for surgery after my December 2011 admission to hell there. I am well aware of the risks of exposure to infection in hospitals, and that place did not maintain cleanliness. I thought I might die in that place. I’m not going back there as an inpatient until it is the last option on the table.
October 1 is when the health insurance exchanges open in the U.S. I have not even been able to get a quote for health insurance since my diagnosis with cancer. This will be a new opportunity for me to obtain health insurance on my own. I have no idea what I can afford, but I pray I can afford some new options.
I went for the clinic appointment despite my misgivings. I arrived early. It took forever to find street parking. I entered and went through the same type of processing as at the hospital. Get up. Answer questions. Be seated. Get up. Answer questions. Be seated. It is like the childhood game Simon Says.
I brought work. Lots of work. And I waited. At one point my vitals were taken. My weight was down. The clinic is part of the same county hospital system as my hospital, but the nurse had to ask me about my allergies to medicines because my records were not available or she did not access them. It was so disappointing to know that once I saw a doctor we would need to go through so much medical history.
My blood pressure was 190/110! I had been waiting for some time amidst other patients. I have to admit it was uncomfortable. Small children crying. Wendy Williams (big news today–absolutely nothing), Bethenny Frankel (big news today–some people have friends who make them fat by cooking for them), Fox News (big news today–Sen. Ted Cruz read a Dr. Seuss bedtime story in his 21+ hour diatribe against the Affordable Care Act), and some other talk show that drove me up the wall as angry people yelled at each other.
All voices today at the clinic were heavily accented. I did not recognize my own name when it was called, and I speak some Spanish. My ex-husband could speak Spanish. I’ve heard my name spoken with that accent. At one point, I heard my name and got up and went over to the reception area only to find no one looking for me. All three receptionists were taking on phones. So I said to myself, “Now I’m hearing voices.”
As soon as I sat down, the receptionist called me again. She said, “Sorry, I forgot I called you.” I was not the only person having trouble focusing.
I should be used to this. But I am no longer sick. Just pained after surgery, chemotherapy, and radiation.
The nurse asked if I felt okay, and I did. No headache. No stress other than the situation. I had plenty of work to do, deadlines approaching, and twenty things I’d rather be doing. Even unpacking sounded great.
Two hours after my scheduled appointment I was out of work to do. I was sitting next to a man with a bad cold in the waiting room. I was tired. I was unbelievably sad that there were so many people for whom this was the best option for care. I told the receptionist I needed to leave. I had work to do.
The receptionist called a nurse who put me in a room. Then I heard my future doctor (Dr. S) ask someone to prep the woman in the next room for a procedure, and he went in there. I waited another fifteen minutes before I left without seeing the doctor. It did not matter if he would be free in five more minutes or in fifty. I was as twitchy as I ever get and needed to get out of there.
This is nothing new. This is medicine for people without health insurance. I think by now I should be philosophical and copacetic. But I am tired and stressed and I wonder how anyone with a job ever gets medical help in the system. From the time I left home in the morning until I got out of the clinic I had spent more than four hours without meeting the doctor, and I fell behind in my work.
I am grateful to have this as an option, but I am praying that the Affordable Care Act means I can afford insurance and schedule an appointment instead of being ordered to appear on a day when I need to be at work. I am praying that one day soon I will be able to speak to a doctor about my concerns for more than five minutes.
I have felt bad all afternoon for leaving, but I am now one-half day behind in my work and have non-negotiable deadlines to meet on Friday. This semester I have 25% more students in one class and am paid 40% less than I would have been if law schools could help their graduates find jobs in the current job market or if full-time pay was a little lower than it now is.
At the rate I’m going, tomorrow for me will be like a blister on the back of your heel when you’re wearing new shoes and it is still morning.
Some days I have to remind myself that I am just underpaid and not down and out. I may be feeling humbled by my circumstances, but I still have my sense of humor. That’s the real reason why I’m Not Down or Out.
I wish I could give you a hug right now! This system has become…god, I don’t even have language for it anymore! It shouldn’t be that we can wage war across the globe and neglect our own. Keeping my fingers crossed that ACA is all that we need it to be, and SOON! XOXOX
Thanks, Lori! That is my strongest wish as well.
You deserve so much better than this. I hope the ACA is the answer. It seems as if the insurance companies are reducing our choices there as much as the GOP. I wouldn’t have the coverage I do without having a good union behind me (UFCW) and Big Business is trying to slowly whittle away what our members have worked hard to maintain. Not improve. Just maintain. And I feel compelled to stay at this job simply because of the security it offers me. It’s not even a skilled job like yours is. It’s unfair that you have to be treated like that, it makes me so angry. But you hang in there and do what feels right to you. Judging by your blood pressure…maybe staying away IS the healthiest option!
Laura, I’m laughing at the last part; but it pains me to sit there with so many other people while we wait hours and hours for appointments. This is not walk-in care. In the last two years when I was waiting four to nine hours for appointments for care, then waiting three hours to drop off a prescription to be filled, and then returning another day to wait as many hours to pick it up, I had no choice. Cancer treatment expenses would have left me with no life to save. So, when the condition was cancer, then I would sit as long as it takes. But doing this every time I need to see a doctor is different. I think back to the day I was waiting to discuss my charitable status and someone said he or she had to get to work and the staff repeated the person’s words in a softly mocking tone all the way up the line of desks. There is an attitude that beggars cannot be choosers. And, I accept that I have to pay in time for what I cannot pay in money. Yesterday I just could not pay with my time for care I wasn’t sure I even wanted. I would rather be at work, earning money, and paying taxes so the programs could be there for someone else more in need. I remain grateful for the programs that have kept me alive, but I am really hoping the Affordable Care Act will help me pay for my own care. Anyone who thinks the easy route is charity has to feel that the situation would be hopeless without it or never have known medicine to be any other way. And, it is possible that some of the people who oppose the Affordable Care Act do know what mass, charitable health systems are like and fight so hard against the Act because they are afraid they might someday have it as their only option. Certainly, if this were the norm in the U.S., I would expect many people to find it impossible to work and ever get health care. Who, having the resources for Cadillac care, would willingly trade it in for a jalopy? However, that is exactly what some think we do in the U.S. If your sole concern is optimizing your own lifestyle, then taxes are a disincentive to living here. Everyone who drives a car pays taxes so others can ride a bus or train. This week I paid $5 to change the address on my driver’s license. Think about it. Every driver in Illinois pays $5 to move whether he or she is moving up in the world or down. And it took me an hour, and I waited to see seven different people at the DMV to do it. The card wasn’t a $5 card. The state uses the fees to pay for other services. I’d prefer a better car than I have now, but I don’t begrudge others the ride. I don’t really want to live in a society in which we don’t care about those less fortunate. I don’t have any children, but I work and pay taxes so others’ children can go to school. It lowers my net income, but I had many years of public education to get where I ended up. I believe that my taxes are an investment in opportunity that somehow benefits me. Oh, I complain when we spend economic recovery funds to put planters in the middle of the street. Who needs flowers in the street during a recession? But the funds keep the road construction crews at work. They keep the gardeners at work. Of course, in my city, they put the planters in some neighborhoods and not others. So, in their own way, the people spending my tax money on projects that make me scratch their heads try to spread the nation’s resources around. I have worked all my life and paid taxes so that, when my darkest days came there was a system to help me back on my feet. I am ready to take care of myself and to pay taxes so that others will find hope when their situations require help. For my part, this is the cost of being an American. We do not ignore the suffering of our people. I’m not sure the Affordable Care Act is the best plan for the country, but I pray mightily that it is better for me than my currently affordable care. Maybe, if more people could afford care, there would be fewer people in the clinics waiting for charitable care, and everyone would feel a little better! Five more days until things get rolling . . . .
Unbelievable!!!
I don’t know much about your system, but it sounds jaw-dropping. Although, I’ve also had to walk out of appointments here to get to work when it meant the difference between food on the table or not.
Sense of humour is the best thing you can keep!
Thanks for understanding. I still feel bad about leaving. Someone else could have taken that appointment.
Love and hugs to you! Especially when unpacking seems like a relaxing option! I will pray for you to have better healthcare options with the legal changes in the next month. So sorry you are going through this. xoxoxo
-Elizabeth
I believe it is reasonable to believe things will be better for you under ACA. I think one of the main reasons is you are Internet literate and can get informed.
As a side note I’m on amlodypine for high blood pressure, as is my wife, and neither of us have any side effects. A high blood pressure induced stroke can leave you little different from a vegetable. It’s worth considering.
Wishing you all the best.
As
Thanks for the information!
Found a site with great coverage of the ACA, including links to other sites you’ll need. Take a look at:
http://www.nbcnews.com/health/got-3-minutes-your-guide-new-health-markets-8C11287042
Thank you!
Whether private doctor, county hospital, or emergency room, it seems to be the same routine. One provides a whole medical history, only to repeat it all over again. When I landed in the ER during my business trip in San Francisco two months ago, I provided the ambulance technicians data at least twice, the same information to two or three nurses — who wrote it down — and then again from the doctor. I patiently recited over and over
I can tell you that they had all the information they needed to send me a bill-but not the information to assist in treating me.
Cheryl – With or without insurance, we both seem to be in the same place. We have full coverage and I’m on the phone everyday arranging care for my husband. I understand completely your need to walk out of that clinic.
Sheri: That is terribly sad and entirely believable. There has to be a better way.
I hope things improve for you sometime soon. I can appreciate your frustration in that waiting room. Good luck to you.
Thanks for the vote of support! I think Obamacare will help me.